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Patient and family advocacy in pediatric epilepsy

11/30/2020

 
I have had the honor of working in amazing families to learn about their epilepsy journeys and to develop informative on-demand webinars to address frequently asked questions. 
November is Epilepsy Awareness Month, which provides a spotlight for a journey that we work on every single day of every year. 

#LetsTalkAboutEpilepsySurgery is a terrific initiative started by Monika Jones JD at the Brain Recovery Project. I was honored to take part and discuss different types of epilepsy surgery for families approaching and considering these options for the first time. This is a great resource with a repository of a series of webinars with surgeons, epileptologists, providers, and advocates for pediatric epilepsy. 

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Neurostimulation is also a surgical option that is offering hope to those who may not have been considered surgical candidates before. My brilliant epilepsy colleague Dr. Joyce Wu and I joined Shae's mom along with Gabrielle Conecker and JayEtta Hecker of DEE-P Connections for a deep dive discussion in this webinar about  Stimulators: Could a VNS, DBS, or RNS help? ​
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RNS, responsive neurostimulator, neurostimulation, neuropace
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    Pediatric Neurosurgery team

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    my TCH blog post on 
    - organizing your medical records for doctor's appointments
    - Craniosynostosis 101

    our patients' moms blog about their family's
    - epilepsy surgery journey 
    - craniosynostosis surgery journey

    some of our inspiring patient and family stories in the news: 
    - epilepsy surgery
    ​- craniofacial surgery
    ​
    - AVM surgery

    Cross-post & links to my posts on other sites

    Updates on pediatric cerebrovascular disease in #NeurosurgeryBlog

    Comments on health policy, pediatric neurosurgery, and the Affordable Care Act in the #NeurosurgeryBlog

    Sharing on the "ask-the-doctor" series on the Children's Craniofacial Association's blog
    ​
    - helmet FAQs: after endoscopic craniosynostosis surgery

    - helmet FAQs: positional plagiocephaly

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    Top rated neuroscience blog 

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SANDI LAM MD MBA © 2016. ALL RIGHTS RESERVED.
   Content is not medical advice. Disclaimer. 
  • Home
  • Clinical
    • craniosynostosis/craniofacial
    • epilepsy
    • cerebrovascular >
      • moyamoya
    • brain tumor
    • head injury & concussion
  • Research
    • Research Scholar
  • fellowship
    • Research Fellowship
  • Events
  • Blog