Patient Journeys and Real-World Outcomes in Epilepsy Surgery Documentary Feature: Life with Half a Brain Clinical outcomes research is most meaningful when paired with an understanding of patient and family experience. In addition to peer-reviewed outcomes research, real-world patient journeys following epilepsy surgery have been documented in the feature-length documentary Life with Half a Brain, directed by veteran, award-winning filmmaker Ken Kobre. The documentary follows children and families living with severe, drug-resistant epilepsy as they pursue surgical care, undergo epilepsy surgery (hemispherectomy in this documentary) and adapt to life after surgery. The film highlights the complex decision-making, the role of multidisciplinary epilepsy care teams, and the long-term goal shared by families and clinicians alike: enabling children to live their lives to their own full potential.
A heartfelt thank you to my brave patients and their families who shared their story with hemispherectomy surgery in the hopes of helping others. Yes, you will see into my operating room.
Life with Half a Brain is a documentary of lived experience and does not substitute for clinical evidence or individualized medical advice. Viewing Information